Carry On, Carry On

I’ve closed enough windows to know you can never look back
If you’re lost and alone
Or you’re sinking like a stone
Carry on
May your past be the sound of your feet upon the ground
Carry on, carry on, carry on.
Since January, It’s been a whirlwind of life.
I don’t even think there are enough words to describe the highs and lows 2019 has brought.
I mentioned in my last blog my devastation over Nelson leaving. He left in January and we haven’t spoken since. It is now May.  I can honestly say I’ve grieved his absence every moment he’s been gone.

But I’ve carried on.

 

This past week, I represented my patient advocacy organization Adrenal Alternatives Foundation at the Adrenal Insufficiency United Conference.

I clearly see the work I have set ahead of me. My focus 100% has been growing this organization.  Doors are opening, direction is becoming clear and I know exactly what I am supposed to do with my life.  Adrenal Alternatives is my heart, my life’s work and my purpose- WITHOUT a doubt.

That being said,  career has always come easy to me. I’ve always been a TYPE A personality, driven and determined. Even through my devastating illness, my dreams of changing the world for adrenal disease has been at the forefront of my mind.

I know for a fact I’m doing the right thing.

But in my personal life, I feel super confused.  Things are so uncertain. I never in this world thought Nelson would abandon me the way he did. I thought we’d move back to NC and start life over again……

 

NOPE.

 

It looks like I’m in Florida for a while. My organization is registered there and the doors to leave have not opened.

 

 

So what do I do?

 

What I can……

 

I will do what I can.

 

Can I control Nelson?

Nope.

I can control Winslow.

Even though I could cry every waking moment over this, I refuse to.

Even though it bothers me that he was there through the horrible, unbearable moments but not the AMAZING victories I’ve seen lately.

I have to carry on.

 

We have to focus on what we CAN control.

We have to work on what WE CAN DO.

We have to treasure the loved ones who ARE WITH US!

If we focus on what’s wrong, we lose sight of what’s right.

 

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This quote soothed my soul so much.

I was always afraid Nelson would leave me…..and now I can honestly say EVERY single nightmare I ever feared came to life…..

But I survived, EVERY SINGLE ONE.

There is nothing left to fear.

I’ve truly conquered every fear I’ve ever ever ever imagined.

Now, it’s time to thrive.

 

My purpose is to change the world for adrenal disease.

With or without him ❤

 

 

If you’d like to see more about my work with adrenal insufficiency, please visit

adrenalalternatives.com

 

 

 

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How to Stop Kidney Stones

 

Anyone who has kidney stones can tell you they are a horrible thing to battle. As someone with chronic kidney stones, I have spent most of my life trying to manage them.

I have explored alternative methods, pharmaceutical options, dietary interventions, holistic herbalism and modern medicine to try and manage my chronic stones.

Recently, I teamed up with Michael Castenada, the creator of the Diet Kidney Stone- Low Oxalate Protocol to film a free, educational webinar on how to manage kidney stones.

I have also published a book with thousands of options to manage kidney stones, renal colic and urinary tract infections.

No one should have to fight this horrific battle with no hope. 

I had lost hope before I was diagnosed with Medullary Sponge Kidney 

I have fought kidney stones, renal pain and UTI’s since I was a teenager and I am here to tell you that there IS HOPE!

I am proud to have teamed up with Michael and our webinar link is posted above.

My goal is to use the darkness I’ve been exposed to shed light to those who suffer as I have.

You may have kidney stones, but they DON’T Have you!

The link to my book is below.

Wishing you all hope, healing & happiness!

 

Love, Win ❤

A long awaited Victory

Right now it is 11:47pm, I typically never let myself be on the computer this late. But I am literally SO excited and GIDDY about this long awaited victory I just had to tell someone!

And naturally as a writer….I have to write about it, right??

As most of you know, I am one of these type A, overachiever, workaholics.

I’ve been unable to work the past two years due to my health.

Writing has been my “job.”

During my bedridden years, I’ve written many things….

But the core of all my efforts, my life’s work….my heart on paper is my fiction series.

I am SO HAPPY to finally announce book one of my fiction series, Townsend is FINALLY going to be AVAILABLE.

YES! TOWNSEND LIVES!

I invite you all to meet my imaginary friends I’ve spent the last two years with! haha….

Ok, that probably sounds weird but it’s true. Fiction writers DO have imaginary friends. 😀

The Release Date for book one is March 2019.

Check it out on Townsendseries.com

Townsend means so much to me. I hope you enjoy reading the story as much as I enjoyed writing it!

Life marches on

I just realized I haven’t written an update since I’ve finally gotten on the Cortisol Pump!

I finally fought to get onto this treatment after two years of trying.

I’ve been on the pump since March and can honestly say I have found improvement.

It definitely hasn’t been a “plug into the pump and be healed” but the fog is slowly lifting.

I have been able to live again, slowly but surely.

My bedridden days are becoming fewer and fewer.

I can do more things. I can sleep through the night without having to wake up to take cortisol pills. I can do more than one activity a week. I can ride in a car. I can walk short distances. I can breathe without oxygen tubing.

Though I am still struggling  with my health, but I am hoping to get back to better function, quality of life and have more good days than bad days.

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Thanks to the pump, I was able to be in my brother’s wedding.

Yes, at the largest weight I’ve ever been….I was a bridesmaid…..

But hey, I was ALIVE to see my baby brother get married….so if the steroids make me fat but keep me alive….so be it.

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Joshua married Rachael and they’re going to live happily ever after.  ❤

 

MEANWHILE!

I am slowly seeing better days.

We had a ton of people fly from North Carolina to the wedding in Florida so I was able to socialize and see friends I haven’t in years.

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Again, not thrilled with my weight….but I’m alive and have really enjoyed being out in the world again… little by little…..

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I’m able to do little things again, like go out to the park.

Walking is still a major struggle, but I’m fortunate to have friends willing to push around my old lady self in my wheelchair.

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Thanks to the pump, I’m escaping the prison my bed had become.

I want to make sure other adrenal patients have the same opportunity to turn their lives around like I am fighting to do right now.

That’s why I’ve started The Adrenal Alternatives Foundation

EVERYONE deserves the chance to have the best quality of life possible.

I’m headed for my better days ❤

 

You are too!  Don’t give up ❤

 

No matter what you are fighting, you must believe there is HOPE for better days.

This is your life, take control. ❤

The Truth about Opioids Campaign is a Blatant Ignorant lie.

The above video depicts the so called “Truth of Opioids.”

As someone who is prescribed opioids, I was instantly intrigued by the audacity of this campaign and frankly was outraged.

But I am writing this post not out of anger, for I believe there is enough of that in this world.

I am writing this post to share the actual truth of opioid use.

Upon seeing this commercial, I researched further. I found there were a number of commercials in this “truth” campaign.

One of these commercials features a young man who appears to be a teenager or, at most in his early 20’s. He talks about getting opioid medications once at a party and then the commercial depicts him with a hammer, smashing his hand, stating “I didn’t know how far I would go to get more.”

The commercial then ends with stating that dependency can happen after just five days and then restates that this commercial depicts the “truth” of opioid use.

I will now explain why this is campaign is NOT the truth of opioid use.

1- This commercial depicts a person who received narcotics ILLEGALLY. This person is not chronically ill or disabled. His problem was not started by opioids that we’re prescribed to him. He acquired a substance illegally.

This was a choice he made. Narcotics didn’t make him an addict. He wanted to get “high.”

An addict will reach for ANY means to get high. An addict can seek a high from any means: alcohol, illegal drugs, prescription drugs….even sugar!

An addict will get high by ANY MEANS they can get a hold of.

This is a problem stemming from ADDICTION not opioids themselves.

An addict is an addict, regardless of their drug of choice.

I am not posting this to bash those who suffer with addiction. That is a real issue that needs care and compassion.

However it MUST be understood that the addiction issue is a separate issue from pain management used by those suffering from chronic pain from disability or disease.

2- This commercial depicts the very opposite mentality of chronically ill and disabled patients.

As someone who suffers with a painful, incurable illness I do whatever it takes to avoid adding more pain to my already painful existence.

Most chronic pain patients have tried everything available to manage their pain and opioids are used ONLY as a last resort in an attempt to achieve quality of life.

Most chronic pain patients on narcotic medications have tried dietary interventions, alternative therapies, physical therapies and naturalistic means to manage their pain, unsuccessfully.

Here is the difference between chronic pain patients and addicts- CCP’s do not WANT to be on medications. They would much rather be able to get out of bed, take care of their kids, have fun with their friends and work without having to rely on a medication in order to be able to manage incurable, chronic pain from disease or injury.

3- The thought of hurting myself to get medication is literally a foreign concept. This is actually against human nature itself.

Self harm can fall into in the category of mental illness, which is another issue that needs to be addressed with compassion and care.

The self harm depicted in this commercial is actually indicative of a psychiatric disorder called Non-suicidal self injury (NSSI), which is intentional physical self-damage or self-harm.

This commercial is representing an issue that frankly should enrage those who advocate for mental health awareness.

This person in this commercial represents someone who needs help with their mental illness.

This does not in any way represent the truth of legal opioid use.

4- The way the person in the commercial receives opioids was illegal in the first place.

This not only depicts pain management in a negative light, but also completely eliminates the truth that pain management is legal.

Legally obtained, properly used and medically necessary opioids are not illegal!

With my personal experience, I started having kidney stones at age 15. I visited emergency rooms a countless amount of times in my young life. I was never offered pain management. I was never offered help. I was told I was too young to possibly have a debilitating illness.

I was later diagnosed with a congenital kidney disease (Medullary Sponge Kidney) which causes chronic kidney stones, renal colic and recurrent infections. I also developed Adrenal Insufficiency because my body produced the stress hormone cortisol so much, for so long, it burned my endocrine system out.

Unmanaged pain has lasting consequences. I now have two diseases because my original one wasn’t treated.

It wasn’t until I was 25 years old that I had access to pain managing medications. Now, I have to visit a pain management clinic every 30 days.

With pain management, you have to sign a contract that you will only receive pain medications from that physician. You have to sign a contract to only fill your prescriptions at one pharmacy. You have to see the doctor every 30 days, and pay the copays. You may or may not be drug tested at random.

It takes A LOT to have access to pain relieving medications.

As a homebound woman who doesn’t drive, it is a struggle to get to the clinic and see the doctor.

Most pain management clinic rules force homebound, disabled people to have to physically acquire scripts every 30 days, regardless of their physical condition or ability to travel.

Pain medicine scripts can no longer have refills, forcing CP patients to get new scripts every month. Which explains why ‘opioid scripts have doubled.’ This statistic is part of the politically manipulated argument used to pass bills limiting pain relieving medication.

Yes, scripts have increased, but only because the rules of prescribing have changed.

Doctors now have to write a new script every 30 days, thus raising the amount of scripts written but not the amount of medication prescribed.

See the manipulated logic there?

Frankly, pain management is unnecessarily expensive as well. I pay a $60 copay every 30 days just for a script. The doctor doesn’t examine me. He doesn’t do anything except hand me a paper. I pay $60 in addition to my cost of medication. How much money could be saved if refills were allowed again? How many private insurance, Medicaid, Medicare and personal dollars are spent now because of this rule?

Recently, they took my script for a benzodiazepine away due to fear of government regulation and political pressure.

My prescribing physician looked me in the eyes and told me he was taking my script away because of fear for his licensure due to government regulation.

He took this medication without a taper, just cold turkey because he feared for his license. I know I am not the only one who has suffered this anti-hippocratic, inhumane treatment.

Think your medications are safe? Think again.

Healthcare decisions are being taken out of physician’s hands because of an ignorant political movement targeting those who are LEGALLY using medications for treatment of chronic pain due to incurable illness or injury.

Folks, this has gone too far.

The majority of chronic pain patients are suffering due to ignorance from politically charged bills to stop this so called “opioid epidemic.” When in reality, the stats are manipulated. For instance, heroin and illicit fentanyl deaths are added to statistics in order to push the agenda that legally obtained opioids are the source of the problem.

The “Truth” of the opioids campaign is a farce and I urge anyone reading this to flood the Truth Of Opioids Site with comments on how this FALSE representation needs to be eliminated!

I am writing this to educate others and help people understand the difference between opioid use and opioid abuse.

Chronic pain patients deserve quality of life!

Please don’t judge something you don’t understand!

If you were sentenced to a life of daily pain with no chance of a cure, wouldn’t you want someone to stand up for you?

So let’s FLOOD this site with comments, This LIE campaign needs to END.

This is NOT the truth of opioids, it is a blatant ignorant LIE.

https://www.thetruth.com/

Send a message today!

Wishing you hope, healing & happiness,

Winslow E. Dixon

All content and images used on this site are owned or licensed by Winslow E. Dixon. Unauthorized reproduction is prohibited. (Feel free to share stories and save images, however all images, written posts and blogs are owned by Winslow E. Dixon and protected under copyright law)

Week One- PH Power Protocol

ProtocolPromoPhotoHi all!

I am excited to embark on the next installment of my health journey.

After much research, I have discovered the promising concept of eating according to alkalinity.

I have created a meal plan based on the PH scale, protein and carbohydrate needs, anti-inflammatory standards and dietary recommendations for chronic illness.

I have compiled all this information into what I call the-

“PH Power Protocol”

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Starting Monday (April 30, 2018) I will be doing LIVE videos with instructions on how to properly execute this protocol to achieve better health.

I am starting this protocol to improve my own health and if I can help others do the same, that is my goal!

https://www.facebook.com/PH-Power-Protocol-For-Better-Health-229905784228152/

<—— Please LIKE the facebook page for live updates

Week One grocery list and meal plan information below.

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