I’m not sure where the saying, “Hell in a hand-basket” originated from. This saying makes me visualize some nicely wrapped red and black basket with a big bow on it. I guess who ever started this saying was trying to throw a positive spin on something as dark as hell itself. (The comic below makes me laugh) 😀
I feel like this last year I was handed my own “hell basket.” It was filled with lots of pain, loss and agony. Things like grueling physical therapy to learn to do simple things like hold a spoon, walk and put on pants again…..Kidney and bladder treatments to try to quell the MSK…..We moved AGAIN….and the last final present life handed me in my basket was the loss of the ability to ever carry a child due to the hysterectomy I had no choice but to have….
This past year was ornately wrapped in both physical and emotional pain.
But I am hoping, praying and BELIEVING that 2018 will be a year where I receive a happy basket. 😀
It looks like I am starting out on a good foot. Yesterday, after TWO YEARS of trying, I received a script for the cortisol pump. (Which is a diabetic pump that is filled with solu-cortef instead of insulin) This treatment is as close to normal function as an adrenal failure patient can get. It is supposed to help me live again. It is supposed to help me feel better and find quality of life again.
Yes, we conquered the first step!
Now comes the work. Now comes the task of affording the pump, getting insurance coverage and figuring out the proper amount of medicine and delivery rates to help me live again. This is dangerous and completely in my hands. I am very thankful to have found a doctor with enough trust in me to let me do this. But I also know that when you mess with a life sustaining chemical there are risks. I hope that I will have the wisdom and research to properly do this pump. I want to learn so I can get well enough to return to school and go into endocrinology. No one should have to fight this hard for a better life. This is wrong on so many levels. It has taken me two years to get this far and I want to make sure other adrenal patients won’t have to face this.
I have so many dreams for life again.
I am still in a great deal of pain from my hysterectomy but I am going into 2018 with a renewed hope. A hope that my devastation will lead to my restoration.
I am Overcoming Addison’s, one day at a time.
So I hope whoever is reading this receives a happy basket for 2018. ❤
Video below by the magnificent Angela Milnes who is a pioneer for the cortisol pump in the U.K. This explains the cortisol pump ❤
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