Guys, I did a thing!
As I’ve mentioned before, the past year I’ve been pretty much bedridden. But I’ve been getting weekly treatments in hopes of getting life again. I am also trying to get on the cortisol pump. I am FIGHTING to live again.
And finally, I am starting to.
Above is photos of my treatment day. Every Wednesday, my wonderful friends take me 2 1/2 hours (ONE WAY) to my doctor for my IV’s and infusions. This completely exhausts me but the treatment seems to be giving me some strength back. I hope and pray my progress continues.
I was able to go see Disney on Ice with my mom last weekend. I haven’t gone anywhere but the doctor in a year! I was super thrilled to be able to go out and do A THING!!! 😀
The theme of the show was Toy Story, Frozen, Cars and my personal favorite- The Little Mermaid! I have to admit that I teared up a little during Ariel’s solo. The song lyrics “I wanna be where the people are” just struck a cord with me. I have felt so incredibly isolated from the world the past year. To hear those lyrics and to see the stadium full of other people just brightened my spirit. I am living again….even if it’s just in little tiny ways…..
I WALKED ALL THE WAY UP THESE STAIRS!!!!!!!
This was a HUGE HUGE HUGE HUGE ACCOMPLISHMENT! After six months of physical therapy, I can walk again. Not as far as I would like, but this was MASSIVE progress.
I was able to carry a little purse too. I usually take this massive pill box thing but I consolidated it and felt a little less like an extremely overly prepared old lady. 😀
I’ve been able to go out and eat. 😀 It’s so amazing how many things we take for granted when we are well. I treasure every outside experience now.
I’ve been able to see the ocean. I actually got IN THE WATER!!!!
For the first time in a long time, I feel alive again.
Not to the level that I wanna be- but progress is progress no matter how slow.
My prayer is that God will still use me despite my illness.
I pray the cortisol pump will become available to not only me, but other Addison’s patients.
I was called to live life, and just like the valley of dry bones- I believe God will restore some measure of life to me.
Ezekiel 37:1-14 King James Version (KJV)
37 The hand of the Lord was upon me, and carried me out in the spirit of the Lord, and set me down in the midst of the valley which was full of bones,
2 And caused me to pass by them round about: and, behold, there were very many in the open valley; and, lo, they were very dry.
3 And he said unto me, Son of man, can these bones live? And I answered, O Lord God, thou knowest.
4 Again he said unto me, Prophesy upon these bones, and say unto them, O ye dry bones, hear the word of the Lord.
5 Thus saith the Lord God unto these bones; Behold, I will cause breath to enter into you, and ye shall live:
6 And I will lay sinews upon you, and will bring up flesh upon you, and cover you with skin, and put breath in you, and ye shall live; and ye shall know that I am the Lord.
7 So I prophesied as I was commanded: and as I prophesied, there was a noise, and behold a shaking, and the bones came together, bone to his bone.
8 And when I beheld, lo, the sinews and the flesh came up upon them, and the skin covered them above: but there was no breath in them.
9 Then said he unto me, Prophesy unto the wind, prophesy, son of man, and say to the wind, Thus saith the Lord God; Come from the four winds, O breath, and breathe upon these slain, that they may live.
10 So I prophesied as he commanded me, and the breath came into them, and they lived, and stood up upon their feet, an exceeding great army.
11 Then he said unto me, Son of man, these bones are the whole house of Israel: behold, they say, Our bones are dried, and our hope is lost: we are cut off for our parts.
12 Therefore prophesy and say unto them, Thus saith the Lord God; Behold, O my people, I will open your graves, and cause you to come up out of your graves, and bring you into the land of Israel.
13 And ye shall know that I am the Lord, when I have opened your graves, O my people, and brought you up out of your graves,
14 And shall put my spirit in you, and ye shall live, and I shall place you in your own land: then shall ye know that I the Lord have spoken it, and performed it, saith the Lord.